Preliminary Programme | Tuesday, 5 February
| 11:00 – 13:00 | JOINT SESSION (with Czech, English and German interpretation) | Room: Club E
Chairs: E Müller-Kägi R E Matlary L Haverman |
|---|---|---|
| 11:00 – 11:15 | Welcome and Introduction | |
| 11:15 – 11:35 | Nurses Presentation: Ideal and real role of the haemophilia nurse – Czech experience |
V Cepelakova |
| 11:35 – 11:55 | Physiotherapists Presentation: Important aspects of paediatric health to become a healthy adult |
M Katzerova |
| 11:55 – 12:15 | Psychosocial Professionals Presentation: Preventing psychosomatic consequences in bleeding disorders |
P Buckova |
| 12:15 – 13:00 | Joint Case Discussion and Q&A | All disciplines |
| 13:00 – 14:00 | Lunch |
| 14:00 – 17:00 | NURSES SESSION (with Czech and German interpretation ) | Room: Club E |
|---|---|---|
| 14:00 – 15:30 | Session 1 – Explaining complex medical concepts to patients living with bleeding disorders | Chair:
E Müller-Kägi |
| 14:00 – 14:20 | What should nurses know regarding the coagulation cascade and new treatments? | M Albisetti |
| 14:20 – 14:35 | How to explain difficult issues to patients | M Nolan |
| 14:35 – 15:05 | Health literacy | K Sørensen |
| 15:05 – 15:15 | Q&A | |
| 15:15 – 15:30 | Break | |
| 15:30 – 16:15 | Session 2 – Innovative Approaches for Care Delivery | Chair:
M Bedford |
| 15:30 – 15:45 | T- grow a model of communication for clinical intervention | M Friberg Birkedal |
| 15:45 – 16:00 | Long distance follow-up | S Grønhaug |
| 16:00 – 16:15 | Eight years of nurse-led clinics | M Kavanagh |
| 16:15 – 16:30 | Break | |
| 16:30 – 17:00 | Session 3 – Is there a future for haemophilia nursing? | Chair:
M Kavanagh |
| 16:30 – 16:40 | No, there will be no future | M Bedford |
| 16:40 – 16:50 | Yes, there is a future | K Juusola |
| 16:50 – 17:00 | The audience decides |
| 14:00 – 17:00 | PHYSIOTHERAPISTS SESSION (with Czech and German interpretation) | Room: Club A |
|---|---|---|
| 14:00 – 15:00 | Session 1 | Chair:
P McLaughlin |
| 14:00 – 14:45 | Basics of radiological assessment in haemophilia for physiotherapists | H Marmery |
| 14:45 – 15:00 | Q&A | |
| 15:00 – 16:00 | Workshops* | |
| 15:00 – 15:45 | Workshop 1: Point of Care Ultrasound (with Czech and German interpretation) | M Timmer D Stephensen |
| 15:00 – 15:45 | Workshop 2: Strengthening strategies in paediatrics according to DNS (given in English only) | K Ptakova |
| 15:45 – 16:00 | Q&A | |
| 16:00 – 17:00 | Workshops* | |
| 16:00 – 16:45 | Workshop 1: Point of Care Ultrasound (given in English only) | Room: Club A
M Timmer |
| 16:00 – 16:45 | Workshop 2: Strengthening strategies in paediatrics according to DNS (with Czech and German interpretation) | Room: Club B
K Ptakova |
| 16:45 – 17:00 | Q&A |
*To encourage interaction during the Workshops, participants will be split into two groups. Half of the group will first attend Workshop 1, then Workshop 2 and the other half of the group will attend the Workshops in the reverse order.
| 14:00 – 17:00 | PSYCHOSOCIAL PROFESSIONALS SESSION (with Czech and German interpretation) | Room: Club D |
|---|---|---|
| 14:00 – 15:00 | Session 1 | |
| 14:00 – 14:45 | Differences between the present and future through the new treatments | G Golan |
| 14:45 – 15:00 | Q&A | |
| 15:00 – 16:00 | Session 2 | |
| 15:00 – 15:45 | The effect of bleeding disorders on the wider family and caregivers | C Burgess |
| 15:45 – 16:00 | Q&A | |
| 16:00 – 17:00 | Session 3 | |
| 16:00 – 16:45 | The effect of growing up with haemophilia into adulthood | A Torres-Ortuño |
| 16:45 – 17:00 | Q&A |
| 17:00 – 18:00 | Networking Reception |
IMPORTANT: Pre-Congress Day registration requires a separate, additional fee and is not automatically included in the registration for the main congress.